Programme no. 557-P
Primary care - how to support patient participation as partners?
Britta Berglund*1, Christina Fjellstrom2, Lillemor Fernström3, Eva-Maria Dufva4, Pelle Johansson5, Annika Nyström Karlsson6
1Handikappförbunden,Sundbyberg,Sweden, 2Handikappförbunden,Sundbyberg,Sweden, 3Handikappförbunden,Sundbyberg,Sweden, 4Handikappförbunden,Sundbyberg,Sweden, 5Handikappförbunden,Sundbyberg,Sweden, 6Handikappförbunden,Sundbyberg,Sweden
* = Presenting author
Objectives: One aim for this project is to clarify the optimal factors that make primary care functioning for these patients, another aim is to initiate knowledge development in cooperation between patients and staff. The aim is also to produce a material for use in primary care education about chronic patients’ needs.
Background: Many patients with chronic diseases have reported difficulties with care in the primary care sector. Their problems are lifelong and they need follow ups and also need more knowledge about their disease.
Results: The first year we have visited eight primary care centers in the country and discussed together with patients and staff how the care center is working, difficulties and wishes. There are differences between care centers in bigger areas and small areas in the country. All centers we met are interested to meet us again and try to go forward with these questions.
A project group started with one person from each of the four patient organizations: Astma/Allergy,
Diabetes, Heart/Lung and the Rheumatic Association. During 2014 primary care centers in Sweden are visited. Discussions are held with staff and patient representatives at the care centers. The focus of these meetings are the items in the new Patient law that will be in action 2015.
Conclusion: There were several points discussed that depend on the allocation of finances. The primary care center is depending on available resources to be able to do what is needed, and coordination of care is sometimes difficult even if there is as we found a will to make care function for the persons with chronic diseases. Patient preferences are often focused on availability and how patient needs are met, but they need as well to have information about the work processes at the care center.
Points for discussion:
Finances: what is the impact of the method chosen today to finance primary care? For patient security and participaion in a more equal way? For professional development? For staff turnover?
How can it be possible for patients to participate in design, implementation, and evaluation of care in a better way than is made today?