Programme no. 508-SY
Public Health
REGISTERS FROM PRIMARY CARE – VALUABLE ASSETS FOR RESERCH? EXAMPLES FROM THE SCANDINAVIAN COUNTRIES
Kristina Bengtsson Boström*1, Janus Laust Thomsen*2, Inger Njølstad*3, Jan Hasselström*4, Jörgen Månsson*5
1Närhälsan R&D Primary Health Care, R&D Center Skaraborg,Västra Götalandsregionen,SE-541 30 Skövde,Sweden, 2University of Southern Denmark,Odense,Denmark, 3Institutt for samfunnsmedisin, Epidemiology and Medical Statistics, University of Tromsø,Tromsø,Norway, 4Karolinska Institutet,Center for Family Medicine,Stockholm,Sweden, 51Institute of Medicine/ Dept of Public Health and Community/Primary Health Care, Sahlgrenska Academy, University of Gothenburg,Gothenburg,Sweden
* = Presenting author
Symposium
Objectives: To present large primary health care registries in Scandinavia

Background: Research on outcome of treatment, quality assessment and on how to implement new knowledge in practice can be performed using data from electronic medical records linked to national registers.
Content:

The Danish registers - a paradise?

Halling A, Kristensen T, Thomsen JL, Søndergaard J, Scroll H. - The future use of the Danish primary care database (Dansk Almen Medicinsk Database, DAMD) is a bone of contention. If administrative use of diagnoses for control of care is inaugurated in addition to quality assessment and research, physicians might begin to code strategically. This could risk the validity and usefulness of the database.

The sixth survey of the Tromso Study (Tromso 6), 2007-08

Eggen AE, Jacobsen BK, Mathiesen EB, Njølstad I, Wilsgaard T.

-The Tromsø Study, initiated in 1974, is an epidemiological, prospective study of health conditions and chronic diseases, and a resource for the surveillance of disease risk factors. The purpose of Tromsø 6 (2007-08) was to collect novel and repeated measurements of exposure data and to assess levels of disease risk factors.

Swedish Primary care cardiovascular database (SPCCD)

Bengtsson Boström K, Hasselström J, Hjerpe P, Kahan T, Manhem K, Wettermark B.

-SPCCD comprise 74 751 individuals with hypertension 2001-2008 from one mixed urban and one rural area. Clinical and laboratory data, data on drugs, socio economy, consumption of care, causes of death, were retrieved. Basic findings, patterns of treatment, persistence of antihypertensive treatment as well as blood pressure target attainment will be presented.

NPR - National Primary care Register - Quality Register in Swedish primary care

Jörgen Månsson

- As nearly all primary care units are computerized a national initiative for launching a national Primary Health Care quality register using automatic collection of information has been taken. A regional register in West Sweden (Q-reg PV) comprise 250,000 individuals, 65,000 with diabetes, 200,000 with hypertension and 45,000 with IHD. Q.reg PV is used for building a national standard for collecting data from all regional systems.

Method: Since electronic medical records became standard for registering encounters with patients data has been gathered for addressing issues in administration, quality assessment and also for research purposes
Other considerations: Proposed panel discussion

Advantages and draw-backs with registers in primary care.